Books on PDA

There are a small number of books either about or containing Pathological Demand Avoidance in them. I’m told there are some more on the way which I’m excited about and will be sharing the links to once they are out. In the meantime here is a list of the ones which are already published. I’ll […]

Now or never

I have a now or never mentality when it comes to tasks. When the post comes I read it immediately and deal with whatever it is straightaway. Appointments I record straight into my diary, letters, emails, notifications I reply to straightaway. This isn’t because I’m proactive or ‘on the ball’ or even organised. I’m forgetful […]

School?

School – a place where a bunch of kids are placed into a room and told they have to do certain activities to learn skills that may or may not be needed in their future lives. For kids, school can be incredibly hard. It’s a place full of sensory difficulties, social struggles, loss of control, […]

What my meltdowns look like

It’s commonly known in the Autistic community that a meltdown is nothing like a tantrum. It’s a total loss of control, a need to get emotions out, to find some stability by exploding and getting rid of the pressure building up inside. Everyone knows you cannot reason with someone when they are having a meltdown, […]

Where’s the support for the neurodiverse family?

When a family is given support or advice it’s nearly always tailored to NT’s parenting neurodiverse children or towards NT siblings of neurodiverse children. But what about the neurodiverse family? The PDA Soapbox recently created a blog post asking for advice on how to parent multiple neurodiverse children, you can read the post here. It’s a brilliant […]

No, we can’t just accept ‘no’.

We can’t just accept ‘no’. There is no accepting it for us. It’s not a game we are playing, we’re not trying to ‘win’ anything, we’re not doing this for fun or because we want to. This is our life. We don’t want to act this way. We don’t get to ‘win’ against ourselves. Everyday […]