The monster

There’s a big, bad monster living in my head It’s eating away at me from under my bed   I hear so many times how we (us PDAers and Autistics) don’t seem to care; about our appearance, about our hygiene, about our health, about the fact that we smell because we haven’t washed in days […]

A morning in the life of a PDAer

A typical weekday morning goes a little like this in my house: I wake (or get woken) anytime between 5am and 7:20 am when my alarm goes off. If it’s too early to get up I’ll tell the kids to go back to bed after I’ve figured out why they woke up (nappy change, thirst, […]

Books on PDA

There are a small number of books either about or containing Pathological Demand Avoidance in them. I’m told there are some more on the way which I’m excited about and will be sharing the links to once they are out. In the meantime here is a list of the ones which are already published. I’ll […]

Now or never

I have a now or never mentality when it comes to tasks. When the post comes I read it immediately and deal with whatever it is straightaway. Appointments I record straight into my diary, letters, emails, notifications I reply to straightaway. This isn’t because I’m proactive or ‘on the ball’ or even organised. I’m forgetful […]

School?

School – a place where a bunch of kids are placed into a room and told they have to do certain activities to learn skills that may or may not be needed in their future lives. For kids, school can be incredibly hard. It’s a place full of sensory difficulties, social struggles, loss of control, […]