A recent article on the BBC had a bit of controversy when it was released, for a start the title was misleading and the article could have been written far better than it was, some of it could actually be considered insulting. While the actual process makes sense and could help some parents and autistic children, the way it was presented was more likely to put people off than draw them in.
Here is a link to the article if you want to read it for yourself.
I decided, since the science behind the idea is sound, to re-write how the article should have been written in order not to insult parents and mislead readers.
New strategy revealed that helps parents of Autistic children to better communicate with their child.
Giving mums and dads the skills to communicate differently can dramatically improve the chances of Autistic children independently communicating with others, a long-term study has shown.
In the training, parents watched films of themselves playing with their child while a therapist gave precise tips for helping their child communicate.
“What is remarkable is the pay-off,” said Louisa Harrison, who has seen a huge improvement in her son Frank.
Experts said the results, published in the Lancet, were “hugely cheering”.
The study focused on Autistic children, who were often unable to talk to their parents.
For Louisa’s son Frank, lamp-posts were a marker of his progress using the method.
Louisa, from Cheshire, said: “He loves watching lamp-posts come on in our street, so autumn is a very exciting time for us.
“Several years ago it was a largely silent interaction, but now he will be so chatty, ‘Mummy, Mummy, look they’ve gone on in a different order.’
“If you’d told me four years ago he’d come out with a sentence like that then I’d be crying,” Louisa added.
Different, not better
The researchers’ idea was simple: change mum’s and dad’s parenting to help improve the social skills of the child.
Dr Catherine Aldred, a consultant speech and language therapist with Stockport NHS Trust, stressed it was not about blaming the parents.
“We’re taking the parent’s interaction with the child and changing it, these children communicate differently, so we need to learn how they communicate then use that to include them in communicating,” she said.
Different isn’t easy, but it can be done. Parents were recorded with their child, who might have been sitting, playing alone.
But mum and dad were then shown a highlights package of the easily-missed moments when the autistic child subtly moved to play with their parents.
Communication specialists then worked with the parents to give them the skills to get the most out of these brief moments.
In small steps, it eventually moved on to getting the child to speak more.
Louisa told the BBC: “You notice things you wouldn’t notice in real time.
“Things like waiting, giving Frank plenty of time to communicate and commenting rather than questioning him, which puts on pressure to respond.
“You feel like you’re being really skilled-up by these people who trust your judgement about what makes your child tick,” she added.
The trial with 152 families started shortly after the children were diagnosed around the age of three.
Normally their differences would become more obvious with age.
In the half of the families given the usual therapies, 50% were seen as struggling the most at the beginning and that percentage predictably increased to 63% after six years.
But the opposite happened in the families given the intensive training.
Among these, 55% of the children were seen as struggling the most at the beginning and 46% after six years.
The report’s lead author, Prof Jonathan Green from the University of Manchester, said the results were “extraordinary”.
He added: “This is not a ‘cure’, in the sense that the children who demonstrated improvements will still struggle in some ways”.
But he told BBC Radio 4’s Today programme that the research suggested working with parents could lead to long-term improvements.
He said: “It suggests that what the parents have been able to embed into the family has sustained even after the end of the therapy which is really encouraging.”
Adumea, whose son Kofi, 12, took part in the research, told the BBC: “What’s so powerful about this therapy is the fact that it extends beyond the hour you spend within the therapist’s office, because it carries on into the home.
“And as Professor Green said, it embeds into family life and the way in which you communicate with your children and from what you learn from that, you can then tell schools: ‘This is working, try this’.”
One in 100 people are Autistic, but there is no drug treatment and families often desperately turn to quack therapies.
Dr James Cusack, the director of science at the charity Autistica, said: “Parents commonly tell us that they fight for a diagnosis, but when they finally get it, the cupboard is bare, with little information or tailored support available to them.
“Too often, parents fall victim to the false claims of charlatans who prey on desperate families.
“These results look promising for the many thousands of parents who want to find early interventions for their children based on solid science,” he added.
Dr Max Davie, from the Royal College of Paediatrics and Child Health, said: “[This] is a hugely cheering message for families.”
N.B. some quotes have been altered to show what would have been preferable to say. These quotes are not a direct quote and should not be taken as such. To see the original quotes please click on the link at the top of the page.